Update from Calle – March 22nd

Sunday, March 22, 2015 at 07:27

Gussvattnet 247, 830 90 Gäddede, Sweden

Google Maps

0.0064, 0.0014 alt: 390m

Waxing Crescent

 

FRIDAY MARCH 20TH, 2015

* 5:25pm, Mom is in the TV room watching TV. Boar and Göte are also there.

* Mom and I go in to Mom’s room.

* I have bought some food that we unpack. I haven’t had dinner.

* Mom and I make dinner. I am having Lasagna. Mom is having a toast and a glass of milk.

* We are doing the dishes together. Mom is drying and putting the dishes away. She is the best!

* We are both tired, but I ask Mom of she wants to see a movie. She does!

* After dinner and cleaning up we are watching a movie together. We are watching “Despicable Me”.

* Mom likes the movie (and so do I).

* 7:20pm, Staff comes in and wants to take Mom out for fika. Mom objects. I ask Mom if she wants to fika with me in the room. Mom wants that. The staff confirms that I am not allowed to have fika together with Mom in the dining room. Mom wants to have fika with me. The staff leaves. Mom is relieved.

* We watch another 10 min of the movie. Then I ask Mom if she wants to have fika. She does. We are pausing the movie to make fika.

* I tell Mom that I have a surprise for her. Mom is happy. She pats my cheek.

* I go to the car to pick up fresh home baked soft thin bread that Karin Andersson had baked in the afternoon and that I picked up on the way to Mom.

* We make fika. Mom helps.

* When I open the home baked fresh bread then Mom is really excited.

* Mom and I are eating the yummy bread with messmör and drinking hot chocolate.

* We keep watching the movie while we are having fika. Mom really likes the movie and she is laughing.

* Before we are done with the movie and fika the staff come in to put Mom to bed. Mom objects. Staff don’t care.

* They pull Mom away from the table. Mom clings to me for all that she is worth. She holds my hand as hard as she can ands she is terrified.

* Staff tell me too let go of Mom’s hand. I tell them that I am not holding her which they clearly can see.

* Staff uses the force she needs to break up Mom’s hand. Mom tries to grab me again, but she can’t. She is reaching after me and screaming while the staff pulls her away.

* Mom is terrified. I am being sent out of the room. I can hear Mom screaming out in the TV room.

* Staff don’t let Mom go to the toilet. They only changed diapers but don’t clean. It was an ugly smell of pee in Mom’s bed when I came back in. I’ll get back to this in a bit. Additionally, the time they were in Mom’s room would not have let her go to the bathroom doing her needs. Also, the bathroom chair was not used.

* While I was sent out Elliott and Mandi is calling me. We are talking when staff come out telling me Mom is done.

* I go in. Mom is happy to see me, but it is very clear that she is traumatized from what just happened. She is also smelling of pee. I tell Mom that I am talking to Elliott and Mandi. Mom is happy.

* Mom talks to Elliott and Mandi on the phone.

* She is happy to talk to them, but she is also scared and traumatized from what the staff did to her.

* Mom talks and she cries. Then she gives the phone back to me.

* I talk a little with Elliott and Mandi after this. Then we decide to be in touch later. We hang up.

* The pee smell is awful. I tell Mom. I investigate this a little. It comes from under the blanket. I ask Mom what to do.

* I know that the staff will not care, but she can’t lie in this smell. I also know that Mom is already traumatized from the staff’s treatment. But who can help cleaning Mom?

* I tell Mom that I will ask the staff for help. Mom is worried, but she is ok with this.

* I go to the office. I find 4 people from the staff in the office. I ask them for help and I tell them the issue. They are very rude.

* Staff do come with me to see Mom. They deny the smell of pee in Mom’s room!!! They are also extremely rude and they try to forbid me to investigate when I smell pee like this. (Well, Mom wanted me to and I think she decides. Furthermore, if she smells of pee then someone should find out why and then help her.). They staff were rude and crazy. They refused to help Mom.

* So what can I do then?

* I tell Mom that I am sorry, but that I can’t do much about it being alone and with that staff at Levinsgården. I would have needed some help. But who?

* Levinsgåden will deny the pee smell. If I try to help Mom they will accuse me for things and put Mom in worse trouble. There is no good solution as long as she is at Levinsgården.

* I stayed with Mom until she got calmer. We prayed evening prayers and I said goodnight, but I told her that I would stay and clean up. Then I did the dishes from our fika.

* When I was cleaning up and doing the dishes Mom seemed to feel good. She obviously felt good hearing me in the room. She fell asleep and slept while I was cleaning up.

* When I was done she woke up and was a bit worried. I told her that I would stay a little longer. Then she was calm again.

* I stayed with Mom for a while. She was sleeping. By 11pm I thought that I could leave.

* I kissed Mom goodnight. She looked at me and she didn’t object that I was leaving. She waved to me as I was leaving.

* I left Mom’s door open. I waited a bit in the corridor. Everything was calm. Then I left.

 

March 22, 2015, 13:51

 

Sunday, March 22, 2015 at 08:48

Gussvattnet 247, 830 90 Gäddede, Sweden

Google Maps

0.0064, 0.0014 alt: 390m

-4C Moderate snow, Humidity: 92%, Pressure: 1009.0 mbar, Wind: S at 18 km/h

Waxing Crescent

 

SATURDAY MARCH 21ST, 2015

* 12:50pm, Dad is with Mom.

* Dad is preparing for the fika with Inger and Reidar, the Norwegian friends that will come at 2pm.

* Dad tells Mom hello from Gunbritt Örjebo. Mom is not interested.

* I told Mom that I had spoken to Elliott, which she knew from the night before. That got Mom’s attention. I tell Mom hello from Elliott. She is very happy and excited.

* I ask Dad if he has talked to Kjell Söder. He tells me that he did. I ask him what the result was. After him talking about other things I ask him again. He then says that Mom is not welcome to Östersund. I ask Dad if that is what Kjell said. Dad says that Kjell has set up requirements that Mom doesn’t fulfill. Additionally, Kjell has told him that he is fully booked for the next two years. Again I asked if that really was what Kjell told him. Then Dad started to come up with other reasons to refuse Mom too go to Östersund. Among other reasons he says that Mom’s friends don’t want her to go to Östersund. I objected to that: “What kind of friends would refuse a stroke victim care?”. Additionally, Mom has many friends around the world that support her to get care and to be treated better.

* I ask Dad if Mom’s own will matters to him. It is very clear what she wants.

* Dad lines up a number of lies including that Mom needs to be here for her social interactions. However, although he lives only 200 meters away he can’t even eat the meals with Mom. Then he is the one that has requested the staff to isolate Mom at the meals and to put her to bed in the middle of the day against her will and requests to lock her in even though Mom is screaming in panic and is scared to be locked in. Then in the next sentence he claims that Mom needs to be locked in to be protected from the other residents. What kind of social interaction is that?

* There are many lies and his logic does not work. But he keeps saying that Mom doesn’t fulfill Kjell’s requirements and that Kjell doesn’t have time to help Mom.

* I ask Dad if we should call Kjell. Dad refuses. Then I ask Dad if we can let Mom go to Östersund this week to see Kjell. Dad keeps saying that Mom does not fulfill the requirements. Then I tell Dad that we should call Kjell and just ask right away when we are all there (Dad, me and Mom most importantly). Dad doesn’t want me to call Kjell, but he refuses Mom to go to Östersund referring to Kjell.

* I tell Dad that I will call Kjell and we can ask him right away. Dad objects, but I still call Kjell.

* Kjell answers the phone. He has time to talk to us.

* We put on the speaker phone so we all can hear: me, Mom and Dad. We are all sitting by the table with Mom between us. I show Mom the phone so she can see that we are talking to Kjell.

* Kjell explains the requirements and the conditions. From his point there is nothing hindering Mom to come to Östersund for an initial interview and an evaluation of what they can do to help Mom. Mom is welcome.

* I ask if we can come down with Mom this week. Mom looks happy and hopeful. Mom is part of the discussion.

* Dad takes the phone to talk to Kjell. I tell Dad to keep the phone here so Mom and I can be part of this.

* Dad comes up with ridiculous accusations that I am talking above Mom’s head regarding these decisions among other things. Then he is using this to refuse Mom to go to Östersund for treatment.

* Mom gets very upset when she listens to Dad. She hits Dad twice and she is very upset with Dad.

* Dad is angry. He leaves in the middle of the call. He takes the fika with him and he makes sure that the Norwegian friends are not coming to see Mom.

* I ask Dad “Who is talking above Mom’s head?”. Dad doesn’t reply.

* I ask Dad if he doesn’t care about what Mom want. Dad doesn’t reply.

* Dad leaves.

* I keep talking to Kjell. Mom is not very unhappy that Dad left. She keeps listening to me and Kjell talking. Sometimes she loses focus and makes sounds, but she stops when tell her that I still talk on the phone. I keep the speaker on so Mom can near everything.

* Kjell confirms that he heard Dad’s arguing and how Mom objects. He is happy that he heard what Dad said and how he refuses Mom care. He finds that unpleasant.

* Mom and I spend the afternoon together. We take a walk to Forsgården, we make fika together, we talk a bit, we listen to music and Mom sleeps a bit in her chair.

* 5:10pm, Staff comes and take Mom out for dinner. Mom wakes up. She objects. Staff doesn’t care.

* Staff put Mom alone at a table. Mom sees me when I am leaving. She sits alone at her table reaching after me.

 

March 22, 2015, 13:51

Current Stroke Rehab Project – Reacting AB

Kjell-Erik Söder, CEO of the Reacting AB rehabilitation clinic in Östersund, sent some results from the current Stroke rehab project that he is leading.

Click here to download the Swedish document: RASmöte 16 febr 2015 (1)

Here is the English translation:

Cover page:

The brain will be stimulated. . . . .

Fit for purpose . . . . . . . . . .

Page 2:

Results / Tester in motivation and evaluation purposes / RAS project 2014-2015

TUG : Functional gait / leg strength and mobility / get up from the chair – go 3 m in front and re – seating . 10 m: Walking speed 6 min: Walking Ability – number of meters for 6 min / endurance

Romberg ( balance) : Postural balance ability

Reaction: Reaction Ability Audio (R1) , alto ltr light ( R2) , audio -va light – hay light ( R3) Strength: 1.Hand , left el hay, 2nd Leg hay + LEFT

Blood pressure : sitting at rest.

 

                   Grp 1 ( 8)      Grp 2 ( 9)

TUG                 + 33 %          + 35% 

10m                 + 16 %          + 23% 

6 min               + 34%           + 37% 

Romberg             +85.4 %         + 66% 

The reaction          

R1                  +18.9 %         + 15.2 % 

R2                  +19.6 %         + 13.8 % 

R3                  + 26%           + 19% 

Bone Strength       + 22%           + 15% 

Hand strength       +15.3 %         + 12 % 

Blood pressure      equal           lower

Statements by participants: Have learned more under 3.5 weeks than 6 years in healthcare Not using a cane when I walk longer Easier to get up from the floor Not as tired as before, better balance , neighbors have seen a difference in my development have used the left arm much better

Great staff and nice rest rooms It makes me happy to come here

Page 3:

* ” Reduced intake of medications ( pain) * Better sleep and ability to detente

* Increased flexibility and strength , improved stamina and balance

* Less pain and feel in better overall shape

* Dryers keep focused much longer

* Can recommend the project to other

* Got ideas for your own leisure activities

* Increased knowledge of the knob and body

* Received the increased knowledge of planning and training

* I feel more motivated to continue training and exercise

* Can now on group training at Reacting

* In the exercise group received new and pleasant companions – greater cohesion

* Nice rooms and knowledgeable instructors

* Good and stimulating to work out together with other healthy people “

 

Last Page:

Rubber boots filled with water to land on the “right”

Bridget has promised to reactivate me after bone fractures. . . .

Your step so . . . . . .Can it go . . . .

 

                       Thank you!

Guidance from United HealthCare on eszopiclone

FOR MORE COMPLETE INFORMATION ABOUT THE DRUGS, PLEASE SEE THIS PAGE: ZOPICLONE (IMOVANE)

The document (Excel) was sent to Dr. Daniel Fierer, by United Heahttps://web.archive.org/web/20170324172116/https://freeida.com/drug-zopiclone-imovane/lthCare. There is a clear entry for not using this drug for longer than 90 days. Zopiclone itself is the “parent” drug of eszopliclone and is not available in the United States so there are not American documents on that drug, but they are similar and if anything, eszopiclone would be a safer drug than the zopiclone that Ida is being perpetually given.

You may download the entire document here: PATH_High Risk Medication Crosswalk

You’ll find the specific item on the 2nd tab of the Excel document. Here is a cut and paste of the key details:

Therapeutic Category:

Nonbenzodiazepine hypnotics

High-Risk

Medications:

Included when cumulative

day supply is >90 days.

•Eszopiclone

• Zolpidem

• Zaleplon

Medication Risk:

Benzodiazepine-receptor agonists

that have adverse events similar to

those of benzodiazepines in older

adults (e.g., delirium, falls, fractures);

minimal improvement in sleep latency

and duration.

Alternatives:

Insomnia, recommend:

• Low-dose trazodone

• Ramelteon (Rozerem)

Formulary Notes:

Trazodone is covered across

all UnitedHealthcare Medicare

formularies. Please refer to specific

formulary for coverage/copay details

for Rozerem.

As further example that this isn’t just a few doctors that Calle

has talked to, the Australian gov’t (amongst others) also agrees

that Zopiclone/imovane should not be given to stroke patients:

http://www.betterhealth.vic.gov.au/bhcv2/bhcmed.nsf/pages/swcimova/$File/swcimova.pdf

And furthermore, as Calle notes, not to the elderly and certainly not for that long.

PLEASE SEE THIS PAGE: ZOPICLONE (IMOVANE)

Suggested Letter of Complaint

To whom it may concern,

I would like to raise the case of Ida Johansson who is suffering physical, mental and emotional elder abuse at the nursing home in Levinsgården, Gaddede, Sweden.

I am an objective observer and I must speak out because what is happening to this woman is illegal and violates her (and the other resident’s) human rights.

Ida Johansson, 92 years old, suffered a stroke in June 2012. Her husband and daughter denied her post-stroke rehabilitation. She was transferred to the Levinsgården nursing home in Gäddede, the village she lived in where she is now abused as follows:

  • Ida is refused stroke rehabilitation treatment.
  • Patients are forced to spend most of their time in bed. Bed rest is contra to recommended stroke rehabilitation. They have no physical or mental stimulation; the dark rooms they stay in bring on depression and feelings of loneliness.
  • Doors are often locked and there have been instances where residents have been physically restrained.
  • Patients are left to urinate and defecate on themselves in bed. They are often unassisted despite calling for help and left to lie in it for hours at a time.
  • Ida is forced to stay in bed all day and night, which is causing her physical pain.
  • Ida and the other residents are strongly medicated, to the point of senselessness. The medication is often not recorded because doses exceed what any medical journal deems as appropriate.
  • Since September 2014, Ida has been given 7.5mg of Imovane daily. Imovane (a sleeping tablet) can be highly addictive. It is also potentially lethal for a stroke victim who suffers from sleep apnea. Ida’s communication has become increasingly incomprehensible as the dosage of Imovane she is being given has increased.
  • Ida Johansson’s general health is not being maintained. For example, She has untreated skin and toenail infections.
  • Ida’s oral health is not being maintained. She has lost teeth, has dental pain and now finds eating difficult. The risk of developing an infection which could be life threatening for a 92 year old is one which must be taken seriously.
  • Ida’s pain is such that she cries and screams.
  • Staff do not converse normally or socially with Ida or any of the residents. They ignore Ida and the other patients. They talk over top of them, as one might talk about an animal or an object. Staff show no respect to their residents.
  • Ida is treated as though she has no mental capacity; her expressions of like or dislike, assent or objection, fear or happiness are disregarded.

What is taking place at Levinsgården breaks both Swedish and EU law, and violates the basic human rights of its residents.

Ida is being supported by her son, Calle, who has been trying to advocate on her behalf since her stroke. However, the village has ostracized him for challenging the practices at the nursing home.

Calle has been working for two years to alert the authorities to his concerns about the way in which Levinsgården is treating residents. He has not yet had a satisfactory response to his concerns.

Nobody should require protection from those who claim to provide care, be they health care professionals, ‘good man’ or family.

On behalf of Ida Johansson and the other suffering residents of Levinsgården, please take action and see that this abuse is put to an end.

Yours sincerely,

Update from Calle Johansson – Feb 23

There has still not been any change:

She [Ida] is locked in, put in a dark room in isolation, refused to go to the bathroom, punished and put in isolation when she complains or cries about the mistreatment, refused to eat with others, being drugged to unresponsiveness (she is given Zopiclone 7.5mg EVERY evening), etc…

Ida drugged, unresponsive.

February 2nd, 2015

Mom had pooped in her pants. I don’t know how long she had been lying in this. They have changed her diapers now. It stinks in her room, but not in the bathroom. I don’t think they even took her out of the bed.

February 3rd, 2015

They have put Mom in bed in a dark room. 

They have put her to bed in a dark room, not taken her to the bathroom and they have drugged her.

February 4th, 2015

  • Mom was in bed in a dark room when we got there at 4pm.
  • She was alone in the dark screaming. No one came to see her from the staff. 
  • It was 5 of the staff in the office. Still no one cared enough to see why Mom was screaming. And they didn’t care about that they had put her in the dark in the middle of the day – who knows when. 
  • None of the other residents were anywhere. Do they not encourage any activities or social interactions here. Is this a prison?

 This is called torture in all other situations. For an old or injured it is far beyond this.

Later the same day.

They have put Mom in bed. 

She is screaming.

February 8th

Mom closed in in bed in dark room screaming so I could hear it in the corridor when I came. No one bothered to care about that. Insane! Mom is not allowed up for dinner.

February 9th

Mom is in bed in the dark. Horrible poop stunk in her room. I don’t know how anyone can survive in this stunk. They have the door closed instead of airing it out. Mom is closed in in this stunk. Horrible! No smell in the bathroom though. She was forced to do in her pants again most likely in bed.

February 10th

Mom in bed in the dark drugged with the door closed when I got here before 7:40pm.

She was happy to see me, but she is VERY drugged. 

Kjell Söder called. Mom wanted to talk to him, but she couldn’t. She was too drugged. Really insane again tonight. 

Kjell wants to help. 

We need to get Mom out of Levinsgården ASAP. Can you help?

February 11th

Mom drugged and put to bed in a dark room before I got here. Who knows when…

Door to her room was closed.

February 14th

Mom was already drugged when I got here.

February 18th

Mom in isolation cell. They had put her in bed in a dark room and closed her in. This was before 7pm. I don’t know if she has even been up this evening. She was already in pajamas when I got here and she is completely gone, drugged.  She makes sounds but she doesn’t respond to anything.

An hour later.

They made Mom’s room completely dark and put her in bed and drugged her. Then they closed the soundproof door so they couldn’t hear Mom’s sounds and struggle to breathe. 

Sick people. So sick!

Another hour later.

No fika for Mom tonight. 

She is still so drugged that she doesn’t react to anything. She is very anxious when they drug her. She is moving, making sounds and screaming. But she is so drugged that she can’t react to anything that she sees or hears. 

It is horrible to watch this.

Another hour later.

Still completely unresponsive.

February 20th

Mom is in bed in a dark room completely drugged. She looks at me but she is completely unresponsive. 

Crazy. 

She is lying making sounds and they have put on music and closed her in. 

The others are having fika. 

 

Music has been on since 6:40pm.

She was put to bed before then. 

 

Yesterday she was not allowed up for lunch. 

 

February 21st

Mom has very much pain in her stomach. She is refused to go to the bathroom. She hasn’t pooped for 7 days. Feb 14th was last time. Mom is in great agony and she is suffering. I called Dad. He refuses to help her. He hung up. 

What can I do?

This is all very much in line with how the year started. January 1st:

Staff claims Mom didn’t need to go to the bathroom. Mom’s room stinks of pee when we come in. Dad confirms. However, he doesn’t care about that the staff lied and that they refused her to go to the bathroom. He will not take any action.

Also from Ida’s son, Calle Johansson:

Zopiclone (Imovane)

Mom has been given at least 7.5mg Zopiclone every day since at least September 16th, 2014, see record below.

We know that they have giving Mom sleeping pills and possibly other drugs (Sobril, Stesolid, Citalopram) without putting this in Mom’s records. Cecilia has also witnessed this. There has also been indications that they have given Mom more than 7.5mg. So it is possible that she has been given more and it is known that she has been given Zopiclone (Imovane) when they have denied it and not put it in her records. But, we do have this record:

Zopiclone (Imovane) was first given to Mom in the fall of 2012 soon after her Stroke. It was confirmed by the staff initially then denied until summer 2014 when I confronted them with proofs and other statements from the staff. We do have this from May 2013:

Mom did NOT have any trouble sleeping. I spent every night with her in Östersund the first week after her Stroke. I also spent several nights initially at Levinsgården. Mom did not have any trouble sleeping. However, she woke up around 5am as she always did also before her Stroke needing to go to the bathroom. Levinsgården refused Mom to go to the bathroom, which made Mom cry and make noise and have panic until she couldn’t hold it in anymore having to pee in bed. After she done that she was completely devastated and could stare in the ceiling for a couple of hours. No trouble sleeping, but she did make noise and she did try to get out of bed when she needed to go to the bathroom, which was very normal for her even before her Stroke.

The justification from the doctor and the nurses and Dad is that Mom cannot sleep without sleeping pills. They all did know very well that Mom needed to go to the bathroom in the night, but they refused her to go and gave her sleeping pills claiming that she couldn’t sleep. Then they also use this against her in the days refusing her to get out of bed claiming that she was too tired to get up.

Invitation for Rehab from Reacting AB Rehabilitation Clinic

The following is translated from Swedish. The original invitation is attached here: Bäste Calle Johansson. In this letter, Kjell-Erik Söder, CEO of the Reacting AB rehabilitation clinic in Östersund clearly invites Ida Johansson to come to the clinic. Only Ida’s daughter and husband (see: Who Is Involved) are preventing her from going there to receive the care she deserves.

English Translation:

Dear Calle Johansson !

Hereby submit the response to your request for Reacting AB’s ability to limited time to meet your mother Ida, who is currently the last few years are at an aging accommodation in Gaddede , where she has a private room for residents and general supervision .

Has also been informed of some problems in communication and approach between You Calle and staff at the current accommodation.

As we understand , you have a desire to Ida would take part , and the opportunity during our leadership assist in attempts to reactivate her – inspire continued extra stimulation , and during the time at our facility but even after going home and then in a personalized manner.

Both national and international expertise in neurological problemhanteringar is part of our body when it comes to taking on different people’s future prospects in a possible path toward a reactivation and a better well-being.

Emphasize that we are not engaged in health care , but our efforts can be seen as healthy maintenance efforts where the latest advances in clinical work and research in neurological issues form the basis for our action, which is based on each individual’s potential and current status.

Reacting AB conducts some time a reactivation project as a non-profit organization , RAS, procured with us after receiving grants from the Swedish Inheritance Fund .

Applications to participate in this project as large accumulation at present to your inquiry Calle could not be addressed in this project in the foreseeable future .

Reacting AB has the possibility to receive Your mother Ida , under certain conditions that can easily be summarized as:

  1. Not being listed in medical care
  2. Not having extremely high blood pressure
  3. Not had unexplained seizures during the last three months
  4. Have relatives in all the current time at the facility.
  5. Be prepared to conduct reactivation work over two sessions per day
  6. Have accommodation option close to our activity rooms

Before a final acceptance of participation in a reactivation , we would first have the opportunity to:

  1. Personal meeting / interview with family members present
  2. Ida’s medication list at present and during the last two months
  3. Last prepared plan for going rehabilitation and showed progress
  4. Ability to share patient records which gradually prepared for Ida .

This answer may form the first link between us when it comes to a possible participation in our activities which would mean a time of strong involvement of family members’ side and a careful treatment of your mother Ida , where our staff with great commitment would make efforts that may be of positive value for both functions and wellbeing .

Currently, the undersigned not want to take up the costs that we at Reacting would like to have as a replacement for our engagement.

Sincerely

Kjell-Erik Söder, VD

Reacting AB

Körfältets Centrum

831 38 Östersund, Tel 063-18 12 00, 070-699 73 87

Original Swedish:

Bäste Calle Johansson !

Får härmed lämna svar på Din förfrågan om Reacting AB:s möjlighet att under begränsad tid möta Din mamma Ida, som i nuläget sedan några år finns på ett åldringsboende i Gäddede, där hon har ett eget rum för boende och allmän tillsyn.

Har också informerats om vissa problem i kommunikationer och synsätt mellan Dig Calle och personal vid aktuellt boende.

Som vi förstått har Du en önskan att Ida skulle få ta del och möjlighet att under vårt ledarskap bistå i försök att reaktivera henne – ge impulser till fortsatt extra stimulering, dels under tid vid vår anläggning men även efter hemgång och då på ett individanpassat sätt.

Såväl nationell som internationell expertis i neurologiska problemhanteringar utgör en del av vår stomme då det gäller att ta sig an olika personers framtida möjligheter i en ev väg mot en reaktivering och ett bättre välbefinnande.

Poängterar att vi inte bedriver sjukvård utan våra insatser kan ses som friskvårdande insatser där senaste rönen i kliniskt arbete och forskning i neurologiska frågor utgör grund för våra insatser, som sker utifrån varje enskild persons potential och aktuell status.

Reacting AB bedriver sedan en tid tillbaka ett reaktiveringsprojekt som en ideell förening, RAS , upphandlat hos oss efter att ha erhållit bidrag från Allmänna Arvsfonden.

Anmälningar till deltagande i detta projekt har så stor anhopning i nuläget att Din förfrågan Calle inte kan beaktas inom detta projekt inom överskådlig tid.

Reacting AB har dock möjlighet att ta emot Din mamma Ida under vissa förutsättningar som enkelt kan sammanfattas som:

  1. Inte vara intagen i sjukvårdande behandling
  2. Inte ha extremt högt blodtryck
  3. Inte haft oförklarliga krampanfall under de senaste tre månaderna
  4. Ha anhörigstöd under all aktuell tid vid anläggningen.
  5. Vara beredd att bedriva reaktiveringsarbete under två pass per dag
  6. Ha boendemöjlighet i nära anslutning till våra aktivitetslokaler

Före ett definitivt accepterande om deltagande i en reaktivering vill vi först ha möjlighet till:

  1. Personligt möte/intervju med anhörig närvarande
  2. Idas medicinlista i nuläget och under de sista två månaderna
  3. Sist upprättad plan för tänkt rehabilitering och uppvisade framsteg
  4. Möjlighet att ta del av journalhandlingar som efterhand upprättats för Ida.

Detta svar får utgöra den första länken oss emellan då det gäller ett ev deltagande i vår verksamhet som skulle innebära en tid av starkt engagemang från anhörigas sida och ett omsorgsfullt bemötande av Din mor Ida där vår personal med stort engagemang skulle göra insatser som kan vara av positivt värde för såväl funktioner som för välbefinnande.

I nuläget vill undertecknad inte ta upp de kostnader som vi vid Reacting skulle vilja ha som ersättning för vårt engagemang.

Med vänliga hälsningar

Kjell-Erik Söder, VD

Reacting AB

Körfältets Centrum

831 38 Östersund, Tel 063-18 12 00, 070-699 73 87

Original Letter as attached here: Bäste Calle Johansson

About Ida – Before the Stroke

Ida Johansson was a vibrant Swedish senior citizen before her stroke. She was a very active, social person:

  • Ida took walks every single day. Often with Dad and when he didn’t want to go she went herself.
  • She always read books and she recommended the books she read to other people in the village.
  • She did crossword puzzles.
  • She always had a book and a crossword puzzle in her purse if she would have to sit and wait somewhere.
  • She always went to the library to look for new books to read.
  • She always went to church. She was a very devoted Christian and wanted to help everyone she could. She care strongly for everyone in trouble.
  • She played piano everyday and she was singing everyday – music was her biggest passion.

Ida’s son, Calle Johansson, comments: “I also wonder if it is clear how devastating a Stroke is and that no one in their right mind would refuse a Stroke victim the care that exists, which is what the Swedish Stroke Association said, and which should be very clear to everyone that would put themselves in the same situation. You would suffer as much if you are old as you would do if you are young from a Stroke. The Stroke Association, among others, even said that they have never heard of someone that would refuse a person the care that exists. Everyone does the opposite: They fight to get even more care – they want the best care for their loved ones.”

Summary of the Abuse

At Levinsgården:

  • Ida is forced to lie in bed most of the time, against her will. Other residents are frequently confined to their rooms, encouraged to rest all day, and provided with no alternative activities or physical/intellectual stimulation, so effectively they have no choice. The rooms are soundproofed and frequently locked. Bed rest is contra to recommended stroke rehabilitation, never mind basic maintenance of health. Additionally, isolation in darkness brings on depression and feelings of loneliness.
  • We have evidence that at least two of the residents, including Ida, are frequently left to soil themselves in bed, their requests for bathroom access denied. They are then left lying in their own waste for hours at time; this is psychologically destructive, as well as potentially life-threatening (through septicemia).
  • Ida and the other residents are excessively sedated, to the point of confusion and loss of coordination.
  • Ida’s general health is not being maintained; she has untreated lung, skin and toenail infections.
  • Ida’s oral health is not being maintained. Tooth-brushing is often neglected, so over the past two years, she has lost many teeth, and suffers extreme pain when eating. The risk of infection is also potentially lethal at her age.
  • Staff show no respect for any of the residents, talking over their heads, handling or moving them without warning or explaining what they are doing, and almost never conversing with them normally.
  • A crucial social time for the residents at Levinsgården is meal time, but meals are eaten in silence, presided over by one member of staff, and visitors are forced to leave.
  • Ida is treated as though she has no mental capacity by other members of her family and staff, despite being clearly communicative of decisions and opinions. Her expressions of like or dislike, assent or objection, fear or happiness (limited minimally by her lack of speech, post-stroke, which could be regained with rehabilitation) are disregarded.
  • Ida, a devout practising Christian, is occasionally excluded from the church service on Sundays because staff define her enthusiastic singing as ‘disruptive’.

Swedish “God Man”

Ida Johansson’s husband, Gösta Johansson, was appointed as god man for Ida. The “god man” is like a chief guardian. This is an appointment as a trustee or administrator that includes three parts:

What a god man is supposed to do:

 

Description for god man in Jämtland’s Län:

 

The authority that oversees that the godman to make sure that they are doing the job properly and that is supposed to ensure that the principal is protected is called “Överförmyndaren”:

Cecilia Ericzon’s attempt to seek justice through the Swedish Courts

Cecilia Ericzon is a Swedish citizen and friend to Calle Johansson and Ida Johansson. The following is an account of her attempt to seek justice through the Swedish courts.

Cecilia took the case to the highest authority within medicine and care in Sweden; Socialstyrelsen.

She wrote a report of experience at the Levinsgaarden nursing home to Socialstyrelsen. ( Nowadays it is called IVO.)

She also called them several times and gave them new reports.

After some months the Socialstyreslen finally inspected Levinsgaarden. Their investigation confirmed that Levinsgaarden had done wrong in several ways. They made several demands of how Levinsgaarden would have to rectify their unethical and illegal practices. However, Levinsgaarden did not implement those changes.

When Cecilia reported again to them that Levinsgaarden was persisting in their crimes, the Socialstyrelsen became very passive. Their response was simply that Levinsgaarden MUST obey and make the changes, but they made no follow up to monitor whether or not the changes were actually being made.

Cecilia also reported the staff and Anders Andersson to JO (Justitieombudsmannen), the law entity to whom you can report the malpractice of authorities who aren’t following the law. JO turned the case down making reference to the fact that Socialstyrelsen was already involved and that should be enough.

Cecilia wrote to different ministers within the government, but they answered that as ministers, it’s against the Swedish law for them to interfere but wished the cause good luck .

The Swedish Legal government  – how is it organized?

  1. Tingsrätt
  2. Hovrätt
  3. Högsta domstolen

Most cases are solved at Tingsrätten.

If you are not satisfied with their judgement you can take it to Hovrätten if they give you permission for a new trial .

If you disagree with their judgements and you get permission you can take the case to Högsta domstolen .

There is no jury in the Swedish court system .

They have the judge, lawyers and nämndemän (jurors) but not an actual jury . Nämndemän are people with different types of education that are been chosen to be a person with high integrity at trials. Since they attend at several cases they get a lot of experience. They listen and the judge can discuss the case with them but it is the judge who decides .

In the case of Ida’s God man, there was no permission to take it further than Tingsrätten .